Not sure what I am doing but doing it anyway!

I have felt for the last four years that I need to start a blog and share our family story.  I'm not totally sure why I haven't.  Procrastination, fear, not sure.  But here I am starting it so I hope this works!

Our little boy was diagnosed with holoprosencephaly when we went in for our 20 week ultrasound.  We were asked if we wanted to abort our baby.  NO WAY!  We were then told that there was a very small chance our child would live and if he did, it would be in the hospital connected to tubes.  After months of grieving our child that wouldn't live, our Hyrum was born.  He still has holoprosencephaly.  But he was a miracle!  He breathed on his own, he cried, he sucked on a binky, he nursed that night and took a bottle.  We went home the next day to what the Dr.'s said, "to enjoy our baby while we can." 

Hyrum has a lot of struggles, but he is the miracle of our lives.  I want to share his story and how it is taking care of such a sweet boy.  There are ups and downs, but he is always smiling!  Which is the way we should be in our lives.  He helps us so much and is such a joy!